Spectrum-speculation - Autistic Earth Visitor

Me in my dreams

The psychological concept of mindfulness is yet another concept that I just… can’t really apply to myself? I feel like you just have to be allistic for it which is Not Good™, for the majority of anti-stress-therapy is based on it.

Anyone here in the community who made some experiences with mindfulness? If so, how tf were you able to align it with being autistic?

Fact

What is autistic masking, and how does it affect mental health?

This is a common topic of discussion in the autistic community, but I haven’t ever written a post specifically about it before. So, here it is: a thorough explanation of what masking is, examples of it, what causes it, and why it can be harmful but sometimes necessary.

Masking is when autistic people disguise (mask) our autistic traits & behaviors, by replacing them with more “socially acceptable” (read: neurotypical) mannerisms and actions. Usually, we do this to fit into neurotypical social situations, including our schools and workplaces. Masking can require careful internal thought, and often results in a state of heightened vigilance and awareness of one’s body and how it is being perceived by others.

Autistic people are taught from a young age, whether by our families or by society at large, that the way we interact with the world is wrong. We are told that we need to look people in the eyes, smile and nod when spoken to by authority figures, sit still, and have “quiet hands.” All this, despite the fact that most of us find eye contact overwhelming, have to stim to meet our sensory needs, and find it easiest to communicate in unconventional ways.

We are taught that in order to be accepted by our peers, we have to mimic their mannerisms and speech patterns. We have to learn to fit in. Many of us try this, but it’s exhausting work. Things that seem to come naturally to other people are a constant, conscious effort on our part.

The absolute exhaustion and painful overload that happens when we mask can lead to awful meltdowns, and even long-term autistic burnout. When I was in kindergarten and elementary school, I masked all day. I didn’t let myself stim. I was a model student. I smiled and made eye contact with everyone. And when I got home, almost every day, I had massive meltdowns. Screaming, sobbing, violent meltdowns. Many of them lasted for 30 to 40 minutes, but some went on for 3 hours.

It was these meltdowns that led my parents to seek an autism diagnosis for me, which I received at 8 years old, after years of suffering from the effects of masking my autistic traits at school. Because I didn’t know I was autistic, I thought I should be acting like the neurotypical people around me. I wanted to please my teachers, and I wanted to make friends. I was extremely sensitive to criticism from teachers, so I did everything in my power to avoid it.

I distinctly remember seeing fellow autistic classmates with higher support needs wearing ear defenders, and wishing I had my own pair that I could wear to school. I wished that I could stim like them. I wished that I could have sensory breaks like them. But I couldn’t, because I wasn’t diagnosed, and besides: when you’re deemed “high functioning,” you’re expected to mask no matter what the cost is to your wellbeing.

My ability to mask, coupled with my extremely high measurable intelligence, was cause for me to be diagnosed with “mild, high functioning Aspergers.” Nevermind the fact that I still couldn’t bathe myself at 9 years old, that I had to be restrained by my parents for them to brush my teeth, or the fact that I continued to have meltdowns so violent that I broke several doors.

Because I was labeled “high functioning,” I was expected to mask my autistic traits at school and at home. But once I discovered that I was autistic, I rebelled against that mandate. At 9 years old, I started stimming more, exploring more comfortable speech patterns, and reconnecting with my senses. My parents told me to “stop acting more autistic.” But I was just rediscovering parts of myself I had lost.

Now that I’m older, I know myself. There are certain circumstances where I know that masking is a good idea, because otherwise I won’t be able to obtain certain educational or job opportunities. It’s an unfortunate reality that autistic mannerisms and behaviors are still seen as undesirable and unwanted in most professional settings.

So when I’m in those settings, I unmask as much as I can, when I can. I take vestibular stimming breaks in the bathroom. I vocal stim when other people aren’t around. I play with the rings on my hands.

But it’s still difficult. It’s still exhausting. It still takes a toll on me. I have to be aware of my posture, the position of my legs, the movements of my arms and hands, the nature of my facial expressions, the social appropriateness of my words, and more.

And that is why, more than anything, I want society to become more aware and accepting of autistic behavior and body language.

I want to live in a world where I can jump and flap and squeal in public, and instead of staring at me, people laugh and smile with joy. I want to live in a world where adults wearing ear defenders are taken seriously and treated with respect. I want to live in a world where autistic people of color are not at risk of being shot and killed for stimming or having meltdowns in public.

Unmasking will look different for everyone. But I want all of you to know that each public act of autistic expression is revolutionary. I want you to know that flapping your hands in the supermarket is a battle cry. I want you to know that wearing ear defenders in public is to wear a badge of honor. I want you to know that defying the rules in a world not built for you, standing your ground and existing despite attempts to make you disappear, is the bravest thing a person can do. We are warriors, and one day we will win. Remember that.

~Eden🐢

autistic culture is being an adult but still having to choose every night which stuffed toy to go to bed with (and ending up with the whole pile because you love them all)

Couldn’t say it better

It’s like butter

Alia El-Bermani

Earth Visitor

I read somewhere that many people on the autistic spectrum feel like aliens looking in on human society from the outside. It certainly is how I feel. I don’t believe it’s actually true, but I find it helpful to play with this idea and develop my story. 

I found a planet called Kepler 452b, which is one of the many planets astronomers have identified as conducive to some form of life. I like the name, because Johannes Kepler was a super cool guy, so I decided that’s where I’;; be from. And I’ve decided that I’ve been sent here to Earth on a mission. 

Mainly my mission is to observe and try to understand what’s going on here in human society and its relationship to the rest of the amazingly lush and diverse life forms. If possible, Mission Control authorizes me to communicate some messages that may help to redirect the destructive behavior of humans.

The idea that I have my own mission from my home planet is very helpful. By the standards of the neurotypical, heteronormative, capitalist human world, I will always be labelled a failure. “Fine by me,” I try to tell myself. “We have a very different set of standards on Kepler 452b. By our standards, most of you people are failures! So there! Take that, Earthlings!” 

In this blog, I’m going to continue the story like this--communicating with others on the spectrum, doing what I can to cultivate autistic culture, and recording my observations as I compile my report before I return to my home planet. 

Time is short. I must complete my assignment to the best of my ability.  

ironic response: klonopin and seroquel

sincere: the sun and the moon

name two things better than self isolation and the refusal to face reality

Ooh! Aah!

Slugs. 

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