Hey Y’all!

Hey y’all!

I’m about to make a website for an organization I’m creating to help those with hidden/invisible disabilities and illnesses.

I want to be able to make this website accessible for people with all types of conditions and wanted to reach out on here to get any suggestions from people with those types of conditions.

I also created an Instagram for the organization but it’s still in the very early stages so I won’t be sharing yet…

Let me know if you have any suggestions or questions!

More Posts from Sonny-ray-of-goth and Others

3 years ago

As we strive to be more inclusive in theatre and specifically on Broadway, we also need to have the discussion on how much it is appropriate to but actors through. 

Stories about bigotry and the history of it are very important, and in a space like Broadway where you are performing the show over and over, for eight shows a week for a year or more, that can be incredibly taxing. And yes, they are professionals, and part of being professional is being able to hold up a healthy divide between performance and real life, but let me ask you this: If you were doing a show where you were playing a character who got called ugly all throughout the show, would you as the actor be able to go home every night feeling perfectly fine and not having taken those comments to heart? Probably not. And just being called ugly is of course no where near the same level as experiencing racism, sexism, homophobia, transphobia, antisemitism, Islamophobia, etc.

One example of this is the taunting scene in West Side Story, (trigger warning for mentions of sexual assault) a show that is already about gang fighting between one with white members, the Jets, and one who’s members are from Puerto Rico, the Sharks. In the scene if you haven’t seen it, Anita, who is Latina, is pinned down and sexually harassed by members of the Jets. As you can imagine, it’s incredibly hard to watch. And if you are in the very large group of people who have survived sexual assault, especially a woman, ESPECIALLY a woman of color, it can be extremely triggering to see, let alone perform. In fact, Rita Moreno, who played Anita, found the scene incredibly hard to do, as it brought back her own memories of sexual assault. And that was in the movie. I can only imagine how horrible it would be to do eight nights a week in front of over a thousand people.

Clearly, good and accurate representation in theatre and all forms of art does not mean stories that are always about the oppression of whichever group you are trying to represent. It’s about finding that balance between those stories, which are important, and stories that show members of disenfranchised communities not having to face bigotry constantly. And while we work to find that balance, we must remember that just because the bigot is someone playing a character does not mean that the bigotry isn’t real to the person on the receiving end. 

2 years ago

I solved my issue of joint pain after baking for about an hour!!! My mom finally let me get ankle braces after I had a very intense pain day. So I wore my ankle braces with my house crocs. I used to just wear crocs so my feet weren’t straight up on the tile, but crocs have zero arch support so my ankles would by over-pronating for over an hour with almost zero relief. But my ankles braces hold my arches up while supporting my ankles as well so they didn’t over-pronate. I for once was not in pain when I was finished baking!!!

Total win!!!


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3 years ago

Song that reminds me of pride?

Ok so probably really basic but

Yeah...

I don’t have much else to say.


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2 years ago

So excited to have a flare up during my EOC exam tomorrow and not being allowed to have any of my diy treatments because the school refuses to accommodate me, so fun!!! /src

But seriously I had a flare up in the middle of my SAT and it caused me to not be able to finish a section due to incoherency and pain. Literally just let me have my salty beverage…..


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1 year ago

"Electrodes embedded in the brains of four people have captured a detailed and precise portrait of chronic pain."

The team found that a section of the brain just behind the forehead lighted up with a low hum of electrical activity when the study participants were feeling chronic pain. But when participants touched a hot probe, another region of the brain was active, indicating that fleeting pain from an injury operates differently from chronic pain.

“Chronic pain is actually its own separate disease that is not simply an extension of pain in general,” said study author Dr. Prasad Shirvalkar, a pain physician and neurologist at University of California San Francisco Medical Center.

The study is a step toward an objective, universal measure of pain in a patient, Shirvalkar said, to augment the current method available to doctors: asking patients to rank their discomfort on a scale.

2 years ago

Anyone else with chronic pain perpetually curious about what a physically healthy person would do if they suddenly had to deal with your body

Like I'm imagining one of those annoying preppy white girls having to deal with my ankle flare ups (which sometimes feel like my lower legs are getting run over by a train)

It's very amusing and honestly a bit empowering? I mean it makes me feel like an asshole* but I am a strong asshole so HAH

*to be fair that kind of girl is very easy to laugh at especially since they're often horrible to anyone who isn't exactly like them so eh I don't feel too bad about it

2 years ago

Please someone ask me anything

I’m lonely

here’s weirder asks

who is/are your comfort character(s)?

lighter or matches?

do you leave the window open at night?

which cryptyd being do you believe in?

what color are your eyes?

why did you do that?

hair-ties or scrunchies?

how many water bottles are in your room right now?

which do you prefer, hot coffee or cold coffee?

would you slaughter the rich?

favorite extracurricular activity?

what kind of day is it?

when was the last time you ate?

do you love the smell of earth after it rains?

are you a parent? (all answers qualify)

can you drive?

are you farsighted or nearsighted?

what hair products do you use?

imagine we’re at a sleepover, would you paint my nails?

do you say soda or pop?

something you’ve kept since childhood?

what type of person are you?

how do you feel about chilly weather?

if we were together on a rooftop, what would we be doing?

perfume/body spray or lotion?

a scenario that you’ve replayed multiple times?

about how many hours of sleep did you get?

do you wear a mask?

how do you like your shower water?

is there dishes in your room?

what type of music keeps you grounded?

do you have a favorite towel?

the last adventure you’ve been on?

is there a song you know every word to by heart?

what’s your timezone?

how many times have you changed your url?

someone in your life, other than a relative, you’ve known for 10+ years?

a soap bar that smells good?

do you use lip balm?

did you have any snacks today?

how do you take your coffee?

an app you frequently use besides this godforsaken site?

what’s your take on spicy foods?

you get a free pass to kill anyone, who is it?

can you remember what happened yesterday?

favorite holiday film?

what was the last message you sent?

when did you first try an alcohol beverage?

can you skip rocks?

can i tag you in random stuff?

3 years ago

“We cant raise minimum wage bc rent will increase”

Stop using the passive voice. Say what will actually happen. Landlords will increase rent — a voluntary action, not a natural result. The fun thing about voluntary actions is that they can be legislated against. What IS a natural result is that when landlords raise rent, their tenants’ wages automatically devalue. Again, the solution here is to stop the voluntary choice from being a choice at all.

Landlords choosing to increase rent is the problem, not a natural result of the solution.

4 years ago

I hate my love language

Hi I’m your local friendly AroAce.

And my love language is gifts. As I’m writing this I’m currently sitting on the floor making stuff for my friends for Easter.

I love to make gifts for people. Or even buying stuff for them. I will sew them a stuffie, draw them a picture, pain and item for them, make a piece of jewelry or otherwise.

But the issue is,

I like presents too.

That doesn’t sound like a problem except that the people in my life don’t really do gifts.

My parents will typically do something that I was already in need of as my present and my friends will typically just mass produce some sort of pastry for the group to share.

And I know it’s greedy and selfish to want something more, something with more meaning.

But I can’t help it. I don’t talk to them about it because I know I would sound greedy and selfish. I just need to rant about it.

I’m sorry.


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sonny-ray-of-goth - Sunflower grunge
Sunflower grunge

I love all things frog, mushroom, rainbow high… I have Ehlers danlos syndrome and use both a rollator and a cane. Enby that is bad at making friends but likes to have them. I adore many cartoons but haven’t seen even more.

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