🐦‍⬛On Chronic Illness And Existential Dread (not Edited)🪺

In the Summer 2023 I started my jurney of ✨re-wiring my brain ✨ to learn again how to read, how to draw, how to write. How to LET MYSELF do those things. I had a huge blockage in my head for many years due to reasons. You know, trauma alters brains. Also, when you work through Traumata or masking or similar, you might “delete” some connections which leads to #skillregression. Skill regression is a real thing, look it up. And we can sometimes alter it as well by re-learning, by creating new connection. Also, learn something that was “lost” to skill regression. I wish people would research it more, it actually could help so many folx to be able to do things without suffering or do things in general.

So, anyways, since summer 2023 I have been trying to teach myself to read again. I could only read scientific stuff and stuff for my uni (not always, but sometimes) and never finish anything, it was super duber hard labour, my anxiety was yelling and I was trying to concentrate on words in a text while being screamed at by different parts of my brain the whole time. Very tiring. But yeah, it worked, I can sit down and read when the brain fog is not very strong and on some days I can read the whole book in one sitting. Or two books, depending on the size.

So, I just wanted to say, that since then (summer 2023) untill now (March 2025) I have read 38 books of different nature. Sure, some people read 52-60 books a year, but I am not some people. I have issues :) and my Disability is disabiliting 24/7, sometimes more sometimes less. So, I am super proud of myself. I did not believe that it was possible, but it worked. And there is a loooong way to go to learn doing other mostly fun things without feeling like I actually went through an underground passage where everyone is crying, screaming and yelling in fear and despair. That’s how reading felt like 2023 and beginning oh 2024..

(In the last pictures are not the books i‘ve read but I did finished most of them)

Review: L‘Étranger (Albert Camus)

Too bad I could not read it in French. I wish I could.

I really liked HOW it was written. The first half of the story is just cis men being cis men in a nutshell (ignoring, supporting each others in the violence they do, pretending like nothing happens, even helping each other while being like oh yeah he is a good guy you know). The other half is more philosophical. It hit differently also because I had an Ex who was pretty much like the main character: not interested in anything (except YouTube videos), not having opinions, not experiencing emotions very much (not expressing them is one thing but feeling bored by literally everything is different), not being able to have deep connections and be vulnerable with himself or others. On the other hand, the main character is wildly autistic coded for his inability to cope with physical stimuli (I feel that a lot) and remembering things others would not remember while reacting „inappropriately“ to stuff. So I don’t think I liked the story, but it’s on me. I liked how it is written though, Italien watching a film, so many details but it’s not too much. It’s like a strange diary of someone, who does not need people and actually doesn’t mind to die because people are too boring and everything is useles anyway. Something like that. But I would need to read some interpretations for sure, especially since I have bel reading in German.

Review: Siege and Storm (Leigh Bardugo)

Very intense in my opinion. A lot of new characters, drama, you can feel how lonely and tired the main characters are, it’s great written. Also with more funny sentences because they break the intense atmosphere easier. You know, because the story is SO intense. More diverse Charakters, but I misunderstood some reviews about queer folx being in the story I guess… I have some guesses but I feel like I see queer Charakters just because I want them to be queer, not because they might be. Looking forward for the third book of the trilogy, but will read something else first because yeah. Intense.

Finally re-doing my altar after so many months not getting to it. I miss praying. Sure, nobody needs anything to pray, but last months were very stressful and now finally it becomes easier, so, it’s time to reconnect again. Religion is beautiful when not abused.

Review: the WHY café

Read this today and uff, no, I wrote a book on similar topics and my book is simply better. Don’t wanna brag, but it’s true.

The idea, that once you have found your reason for existence, the thing that you want to do every waking minute of your life, that after that you will have enough money to survive, a job, and oportunities will come to you like it’s universe working for you… it’s fun untill you ask yourself “and what’s about the ill?”

Why does nobody ever thinks about the ill? The Disabled? Those, who don’t have the same room full of “you can do whatever you want”s to choose from?

Made me very angry. So, if I knew what makes me the most fulfilled and happy, and I was knocking at all doors and I was talking to all people about it, learning, creating, trying, working my ass off for this… but then got chronically ill and hat to reconsider everything and give up on bunch of dreams… that means I what, did not want it hard enough? If knowing what you are here for and working towards the fulfilment gets help for universe to make the road easier, does it mean I got punishment? What about people who are d*omg in wars and from diseases? The children even, literal children, why does it happen? Why do most passionate dancers loose legs and writers get brain injuries? I don’t believe in a Christian god who is “testing is”, nor I believe in punishment from “something bigger than we are”. I don’t think people deserved to get ME/CFS and become unable to get up, have a chat, read a book or even deal with smells/light/sounds. I don’t think I was ment to not being able to dance, jump and run, to not be able to wake up and feel rested (ever), to not be able to remember words or what I was doing just in this moment. It’s silly, I need to look for clues when I do things and then forget what I am doing. It’s silly untill it happens to you and you understand, any day your intellectual abilities can just leave you and there is nothing anyone can do.

This book is for health people who are in denial about the fact, that over 80% of Disabilities are not born with. And that at some point in a certain age we all become Disabled and need help and will have access needs. And everyone, especially since 2020, can get things like ME/CFS even if you were healthy before. And then no dream, no fulfilling idea, nothing will help and most certainly not the people around you who so desperately try to forget the existence of chronically ill and Disabled people and about them being just one accident or one unfortunate infection away from becoming one themselves.

Health people are just ✨different✨ in my opinion. If your main problem is not the ultra low amount of spoons, chronic pains, brain fog and not being able to do things most people don’t even think about while doing them.. yeah maybe you can gain smth from this book. But me, haha, I am like that, I just get angry and want to shake folx by their shoulders HONEY DENIAL IS A RIVER IN EGYPT!!

Anyways…

Learning how to edit long videos on my laptop is actually really fun. Also it looks almost like the pictures from my ✨vision board✨

Soon I am 27 and will have to make a new vision board for the next solar year. I am very interested to see what things will stay and what will change 🦆🦔

Very hard researching for the Theater science paper writing about VANYA when Andrew Scott is just there. Just putting out all this characters by himself. Let them flirt, make love, suffer. Sometimes two people cannot act out the chemistry between two characters and somehow Scott manages to play chemistry between the characters all by himself. Live. On stage. Uff..😮‍💨 (in my opinion, VANYA is not good as a Chekhov piece, but it’s genius as Andrew Scott’s one man show, just like Akbar from The Guardian said in her Review)

The last weeks were somehow mentally heavy. I mean, I know why, it’s just that I always hope, that this time my body and mind will be used to it. But the only way how we are used to it is to not see it until some weeks in the situation already. It sucks, honestly. I now have to, again, make up a new routine with little to no knowledge about my working hours at the internship, pretend like everything is fine there and then spontaneously change the plan every time someone else wants it changed. I didn’t know that an internship in a theater can be THAT autism unfriendly?? Sure, was clear that it will have some chaos, but really not having no palm at all and not even trying to give the interns some sort of knowledge? Nobody even told me upfront “hey btw we are a theater that has no scripts or anything, we just do stuff in the process, so you need to be prepared for changing hours and not knowing more than one day ahead”. It would be horrible news but it would be better than to find it out on the second day (on the first day nobody told us anything really).

I really really need to stop giving a damn haha

But how when Disability bE DiSaBiLiTing?😭🥲🫠

P.s. it’s a so called “inclusive theater” btw and yes they might be mostly good to the acting group but I am also Disabled can someone include me please T___T

No Visability without acceptance⚧️🏳️‍⚧️

Trans* day of visibility means nothing, when visibility is putting us in more danger. We need medicine and medical professionals to catch up on the fact, that there is more than just cis people (cis peri people for that matter, even though inter* is not trans*). We need them to really UNDERSTAND that their gendering is harming real people especially by slowing the progress of medicine. We need social workers, teachers, psychotherapists, who do the same, who choose people’s life’s and figures over the old books and dusty believes that never have been correct. We need people around us stop thinking in binaries, to stop gendering clothes and perfumes, cables and babies (let’s stop genitalia parties for unborn fetuses, wtf?). We need people to stop putting the cis woman over everyone else on terms of suffering and therefore importance. They become only worse when thinking they only can be victims, not perpetrators (people can be both. People are both.)

Visibility is ok, it’s important, but who wants to become a bullseye for the hating uneducated crowd?..