So I Only Got Diagnosed Last Week Right? I’ve Been In Pain For Years But I Never Had A Name For It

A struggle that's not talked about enough with chronic pain: wanting to sit a certain way (ex: criss cross applesauce, knees up to chest, on knees) but not being able to because of the pain and having to keep your legs straight out

I mean... ask if you want? I’ll answer I just don’t really expect anyone to ask.

lets get personal.

1: 6 of the songs you listen to most?

2: If you could meet anyone on this earth, who would it be?

3: Grab the book nearest to you, turn to page 23, give me line 17.

4: What do you think about most?

5: What does your latest text message from someone else say?

6: Do you sleep with or without clothes on?

7: What’s your strangest talent?

8: Girls… (finish the sentence); Boys… (finish the sentence)

9: Ever had a poem or song written about you?

10: When is the last time you played the air guitar?

11: Do you have any strange phobias?

12: Ever stuck a foreign object up your nose?

13: What’s your religion?

14: If you are outside, what are you most likely doing?

15: Do you prefer to be behind the camera or in front of it?

16: Simple but extremely complex. Favorite band?

17: What was the last lie you told?

18: Do you believe in karma?

19: What does your URL mean?

20: What is your greatest weakness; your greatest strength?

21: Who is your celebrity crush?

22: Have you ever gone skinny dipping?

23: How do you vent your anger?

24: Do you have a collection of anything?

25: Do you prefer talking on the phone or video chatting online?

26: Are you happy with the person you’ve become?

27: What’s a sound you hate; sound you love?

28: What’s your biggest “what if”?

29: Do you believe in ghosts? How about aliens?

30: Stick your right arm out; what do you touch first? Do the same with your left arm.

31: Smell the air. What do you smell?

32: What’s the worst place you have ever been to?

33: Choose: East Coast or West Coast?

34: Most attractive singer of your opposite gender?

35: To you, what is the meaning of life?

36: Define Art.

37: Do you believe in luck?

38: What’s the weather like right now?

39: What time is it?

40: Do you drive? If so, have you ever crashed?

41: What was the last book you read?

42: Do you like the smell of gasoline?

43: Do you have any nicknames?

44: What was the last film you saw?

45: What’s the worst injury you’ve ever had?

46: Have you ever caught a butterfly?

47: Do you have any obsessions right now?

48: What’s your sexual orientation?

49: Ever had a rumour spread about you?

50: Do you believe in magic?

51: Do you tend to hold grudges against people who have done you wrong?

52: What is your astrological sign?

53: Do you save money or spend it?

54: What’s the last thing you purchased?

55: Love or lust?

56: In a relationship?

57: How many relationships have you had?

58: Can you touch your nose with your tongue?

59: Where were you yesterday?

60: Is there anything pink within 10 feet of you?

61: Are you wearing socks right now?

62: What’s your favourite animal?

63: What is your secret weapon to get someone to like you?

64: Where is your best friend?

65: Give me your top 5 favourite blogs on Tumblr.

66: What is your heritage?

67: What were you doing last night at 12AM?

68: What do you think is Satan’s last name?

69: Be honest. Ever gotten yourself off?

70: Are you the kind of friend you would want to have as a friend?

71: You are walking down the street on your way to work. There is a dog drowning in the canal on the side of the street. Your boss has told you if you are late one more time you get fired. What do you do?

72: You are at the doctor’s office and she has just informed you that you have approximately one month to live. a) Do you tell anyone/everyone you are going to die? b) What do you do with your remaining days? c) Would you be afraid?

73: You can only have one of these things; trust or love.

74: What’s a song that always makes you happy when you hear it?

75: What are the last four digits in your cell phone number?

76: In your opinion, what makes a great relationship?

77: How can I win your heart?

78: Can insanity bring on more creativity?

79: What is the single best decision you have made in your life so far?

80: What size shoes do you wear?

81: What would you want to be written on your tombstone?

82: What is your favourite word?

83: Give me the first thing that comes to mind when you hear the word; heart.

84: What is a saying you say a lot?

85: What’s the last song you listened to?

86: Basic question; what’s your favourite colour/colours?

87: What is your current desktop picture?

88: If you could press a button and make anyone in the world instantaneously explode, who would it be?

89: What would be a question you’d be afraid to tell the truth on?

90: One night you wake up because you heard a noise. You turn on the light to find that you are surrounded by MUMMIES. The mummies aren’t really doing anything, they’re just standing around your bed. What do you do?

91: You accidentally eat some radioactive vegetables. They were good, and what’s even cooler is that they endow you with the super-power of your choice! What is that power?

92: You can re-live any point of time in your life. The time-span can only be a half-hour, though. What half-hour of your past would you like to experience again?

93: You can erase any horrible experience from your past. What will it be?

94: You have the opportunity to sleep with the music-celebrity of your choice. Who would it be?

95: You just got a free plane ticket to anywhere. You have to depart right now. Where are you gonna go?

96: Do you have any relatives in jail?

97: Have you ever thrown up in the car?

98: Ever been on a plane?

99: If the whole world were listening to you right now, what would you say?

Hey can anyone who has heds tell me if binders or corsets help with back pain? I’ve been having horrible back pain more frequently recently and I don’t have a way to ask my doctor for recommendations because I don’t have access to chat with him.

Please I’m in so much pain

dear people who think "how could you even function if you *actually* had all that" somehow disproves a person's everyday struggles, kindly shut the fuck up <3

Shout out to the girl in my class who loved to bring cookies and brownies and stuff to school to share with the class and when she found out I was allergic to wheat and soy she started bringing me skittles everytime she brought in baked goods so I wouldn’t be left out

Literally such a beacon of light, I love you so much

Creativity and joy should not be seen as a distraction or as a bad thing WHOMST THE HELL-

idk why i just remembered this but all throughout kindergarten and first grade i used to draw a lil snail in the corner of every paper i had to turn in because it was a happy snail so i thought it would make my teachers happy when they were grading papers because i was a pure and simple child but in 2nd grade my teacher would take off 2 points if i drew it on my homework and 5 points if i drew it on a quiz or test so i stopped but like it was so harmless it was just a lil shitty doodle of a smiling snail it wasn’t distracting me or anything from the task at hand so i’d like to say to mrs whoeverthefuck that snail was supposed to be a happy thing u bitch

psa

no one fucking tells you this so here it is:

when signing out forms to apply for disability / filling out a form for diagnosis

you’re supposed to fill it out as you on your worst days

like, I filled out forms that said I could do most things usually

like, my doctor added in the conditions like “yeah, they can feed themselves when not stressed” “they can do this when not stressed”

but how I should have filled it out was more like

“some days I can’t feed myself” “some days I can’t leave the house”

My doctor didn’t even know this, but I talked to someone who had worked with people with both developmental and intellectual disabilities for a number of years, and she told me to write down how it is for your bad days

this should be a thing they tell you, but it isn’t

part of the reason I didn’t get my autism diagnosis as soon as I should have is because I filled out forms wrong!

Please someone ask me anything

I’m lonely

here’s weirder asks

who is/are your comfort character(s)?

lighter or matches?

do you leave the window open at night?

which cryptyd being do you believe in?

what color are your eyes?

why did you do that?

hair-ties or scrunchies?

how many water bottles are in your room right now?

which do you prefer, hot coffee or cold coffee?

would you slaughter the rich?

favorite extracurricular activity?

what kind of day is it?

when was the last time you ate?

do you love the smell of earth after it rains?

are you a parent? (all answers qualify)

can you drive?

are you farsighted or nearsighted?

what hair products do you use?

imagine we’re at a sleepover, would you paint my nails?

do you say soda or pop?

something you’ve kept since childhood?

what type of person are you?

how do you feel about chilly weather?

if we were together on a rooftop, what would we be doing?

perfume/body spray or lotion?

a scenario that you’ve replayed multiple times?

about how many hours of sleep did you get?

do you wear a mask?

how do you like your shower water?

is there dishes in your room?

what type of music keeps you grounded?

do you have a favorite towel?

the last adventure you’ve been on?

is there a song you know every word to by heart?

what’s your timezone?

how many times have you changed your url?

someone in your life, other than a relative, you’ve known for 10+ years?

a soap bar that smells good?

do you use lip balm?

did you have any snacks today?

how do you take your coffee?

an app you frequently use besides this godforsaken site?

what’s your take on spicy foods?

you get a free pass to kill anyone, who is it?

can you remember what happened yesterday?

favorite holiday film?

what was the last message you sent?

when did you first try an alcohol beverage?

can you skip rocks?

can i tag you in random stuff?

Tag yourself as a random element based on stupid logic

I'll go first

I'm fire because I snap crackle and pop

Ok so at this point I've had two people roll up to me in manual wheelchairs, well, one of them was somebody pushing somebody who was nonverbal at the time, but it still counts. They asked me why I had zip ties around my tires.

It's winter where I'm living and we have really bad snow. And the snow plow people are really bad at their jobs probably because there aren't snow plow people who clean sidewalks. As a solution I got to thinking about how I could increase the traction on my wheels. And the most redneck thing I could think of was taking a bunch of zip ties and tying them around my wheels. They last surprisingly long, and work surprisingly well. It's basically the same premise as chains for your tires during the winter.

I chose to space them out pretty evenly so there's about one for every spoke. You could probably do more or less depending on how many you want and how much traction you get but I wouldn't go more than three per spoke. I realize that it's a bit later in the winter, and I probably should have made a post about this sooner, but I came up with it about a week ago. So please share this, even if you're not disabled, because there are tons of people I know who are stuck in their houses because they can't get around in the snow. A pack of zip ties costs about $5, which compared to $200 knobby snow tires is a big save, and if you want to invest you could get colored zip ties.