doctors will give me a test and go “well obviously we hope it’s not that” and I’m sitting there like bitch I have been through so many tests so many doctors so many specialist I have been in the ER more times than I can count I almost do hope it is that because then at least I know what’s fucking wrong with me instead of walking into the ER with my issues and being told it’s anxiety even though I know it’s not
barely having symptoms for a few days made me think i was cured... turns out that isn't the case
everytime i am out of a flare i convince myself i am usually dramatic and this won't impact my life in any significant way in the future... then the next flare is coming up and changes my mind real quick
i don’t know. i’m barely a person. i just want to be kind and hold someone’s hand. eat an ice cream cone. stare at the lake. feel the sun on my skin. lay in the grass. run through a sprinkler. it’s so easy to forget life is supposed to feel like a deep breath and not a gasp
i just went climbing today which is something that will probably send me into a flare up, but omg it was so much fun...
i wish i could do things like that without consequences
cluster headaches SUCK
i'm just existing and my head is all like *ouch* *ouch* *ouch*
had a low fever for almost a week now, but am refusing to see a doctor cause "not like they would do much"
and that's on doctors constantly dismissing people with chronic illness
sometimes i forget you can actually just pass out from pain
my body just said "nope"
had to cancel so many plans with my friends recently...
do they seem mad? -nope
did they say that they are mad? -nope
do i still think that they are mad? -absolutely
healthy people will never understand the amount of joy i feel when i come home dreading having to feed myself to then realize i still got leftovers
feeling hungover and drunk at the same time eventhough i didn't drink and am actually just chronically ill