Honestly, It's Kinda Disappointing That The Reason I Was Pale And Had Cold Hands Was This, And Not Me

Whenever I get a particularly nasty message, I always check to see if they're following me first. Nine times out of ten, they're not. But they're also, unfortunately, the same people who feel entitled to send me multiple messages in a row, most of them heavily steeped in the language of moralization and purity.

Like whenever I talk about painkillers or pain management, I always get a handful of well-meaning people who are maybe new to my blog or are just young, asking me if I've tried diet/exercise/meditation, etc.

Sometimes I'll respond to them. Other times I'll just ignore them because I get those kinds of messages so often it's like white noise, and maybe part of me hopes if they stick around on my blog, they'll learn it through exposure via my incessant bitching.

When you see me responding to someone offering that kind of advice, it's either because I'm at my fucking limit or because I'm hoping it's a teachable moment and an otherwise seemingly nice person might unlearn some harmful biases.

The people who don't follow me are not interested in any kind of conversation on the subject. They do, however, feel the most qualified to tell me, someone they didn't know existed until one of my posts crossed their dash, how to manage my life, everything I'm doing wrong, and why I'm a bad person.

And for them, my disability is proof that I am a bad person because they view health as a moral issue.

If you're sick, it's because you don't exercise enough, don't eat the right foods, don't pray enough, don't do enough. They genuinely believe that if they say and do all the right things, like a Good Person, they'll never get sick.

It's their security blanket against the harsh reality that anyone is one bad day away from disability. One faulty gene, one bad infection, one bad accident away from a life-long diagnosis. And if they do get sick, it's a test. A challenge to be overcome with Willpower as they learn the True Meaning of Life.

It can never just be a simple fact of life that sickness happens. That disability exists without a moral reason.

And it's suffocating.

Day in, day out. Folks who don't know me from fucking Eve telling me I'm being punished. Not always as outright as that. They don't always use that word. But sometimes I appreciate it when they do because at least then they're being honest. They're not couching it in the softer language of leftist circles. Not hiding it behind concern.

Because the truth is, there are just as many folks who think they're liberal and enlightened who'd be happy if disabled people just stopped existing. They don't like thinking about us because it makes them think about themselves. About their own fragility and mortality, and they hate that. They hate that there's something they can't control with their thoughts and actions. That they can't moralize their way out of.

Honestly, it's a relief when people are just cunts about it because I can hit the block button, safe in the knowledge that they were never the kind of person who would see me as a person. But when it's some 20yo kid with their pronouns, orientation, and "ACAB" in their profile spouting the same kind of moralization, sometimes even with the language of eugenics, it feels like such a betrayal. Like a loss.

And perhaps if I wasn't multiply disabled, I'd have the energy to pull them back. To tell them why they're wrong and hope like hell they realize what they're doing is harmful. But then, if I wasn't disabled, they wouldn't be messaging me, so I wouldn't be dealing with it.

I wouldn't be expected to use my existence as a teachable moment to spoon-feed them compassion. But I am, and I do. When I can. Not always with the grace that's warranted. Not always with the thought and compassion I ought to. (And I don't; I acknowledge that. I'm prone to anger and off-the-cuff remarks that are hurtful too. Though I try to keep most of it to myself or save it for therapy.)

Basically, if you've made it this far through the TED talk, don't be fucking cunts to disabled people. Don't tell chronically ill people to try yoga. Don't moralize pain relief. Suffering is not noble.

You need to kill the cop and the priest in your head telling you otherwise.

And also if you're the nice people sending me nice messages. Thank you. It helps cushion all of *gestures* this.

The sequel ‘Skull Measuring for beginners’ is scheduled for 2025.

Today’s society is no longer Foucault’s disciplinary world of hospitals, madhouses, prisons, barracks, and factories. It has long been replaced by another regime, namely a society of fitness studios, office towers, banks, airports, shopping malls, and genetic laboratories. The society of the 21st century is no longer disciplinary, but a society of the performance. Nor are its inhabitants called ‘subjects of obedience’, but ‘subjects of performance’. These subjects are entrepreneurs of themselves.

Excess work and performance escalate into auto-exploitation. This is much more effective than the exploitation by the others, because it is accompanied by a feeling of freedom. The exploiter is the same exploited. Victim and executioner can no longer differentiate. This self-referentiality generates a paradoxical freedom, which, because of the structures of obligation immanent to it, becomes violence […] In this society of obligation, each one carries with him his forced labor field.

What proves problematic is not individual competition per se, but rather its self-referentiality, which escalates into absolute competition. That is, the achievement-subject competes with itself; it succumbs to the destructive compulsion to outdo itself over and over, to jump over its own shadow. This self-constraint, which poses as freedom, has deadly results..

No-longer-being-able-to-be-able leads to destructive self-reproach and auto-aggression. The achievement-subject finds itself fighting with itself. The depressive has been wounded by internalized war. Depression is the sickness of a society that suffers from excessive positivity. It reflects a humanity waging war on itself.

Today, everyone is an auto-exploiting labourer in his or her own enterprise. People are now master and slave in one. Even class struggle has transformed into an inner struggle against oneself.

― Byung-Chul Han, extracts from The Burnout Society

Willing sacrifice~

Extremely dangerous how "grooming" in the context of child sexual abuse went from being a very specific pattern of isolation and trust-building with the aim of abusing someone to "telling children anything that contradicts their parents' ultra-conservative worldview is grooming" to "selling rainbow flags in a store is grooming" to "literally anyone I don't like is a groomer".

These days the word seems to most often be used by people who don't care about what it actually means and just want an easy "this person is irredeemably evil, kill them now" button.

omfg i forgot that i never showed tumblr my greatest achievement. my pride and joy, my pi-ass de résistance

😴

Franchement ça faisait beaucoup trop longtemps que j’avais pas dessiné le visiteur.