This Makes Me Really Happy. I Hope I Can Be That For Someone.

i NEED you to remember this: you are allowed to be angry at your doctors. you are allowed to be furious. you are allowed to be mad at your nurses and technicians and neurologists and psychiatrists and medical assistants. they are not god. they are human beings and they work in a system that wears them raw, and that is unfair, but it isn't an excuse to treat you badly. i'm not necessarily saying you should throw a brick through the window of their car, but you can, should, must be angry with them for ignoring you, demeaning you, dehumanizing you, dismissing you, acting like you're lying, talking only about your weight, failing to acknowledge you past your symptoms, etc etc etc. you are an equal to your doctor. you are a human being and so are they. do not treat them as beyond reproach. you are allowed to be angry at your doctors.

Okey, the Russian performance has the exact level of batshit insane I’m here for. 12 points

"have you learned how to drive yet" i have the spirit of friendship in my heart. the joy of lifes little things in my soul. the whimsy of magic. the beautiful enjoyment of nature. the answer is no though

you will live and you will say the wrong things and make mistakes and people will love you anyways.

I think the biggest misconception abled people have about disabled people's pain is that it feels like normal pain everyone has felt before, and that you can get used to it and grow a tolerance like normal pain.

ITS NOT LIKE THAT

Here's an example, when I was 12 I got a daith piercing in my ear, It was the worst pain I had ever felt. I felt like someone was trying to crush my skull.

Then I became disabled, And that became the worst pain I ever felt. My joints felt like they were literally on fire almost constantly for over 3 years. It NEVER felt less painful.

Last year I had to get my daith repierced, it felt like a tiny pinch.

The constant chronic pain I feel has increased my tolerance for normal pain, but you cannot increase tolerance for chronic pain. It is always excruciating at worst, very uncomfortable at best, the pain never hurts less. You just learn how to accept it and strengthen your mind enough to think past the pain. YOU CANNOT GET USED TO CHRONIC PAIN. That's why we can't "push through it", or "toughen up". It's not normal pain, your brain is literally confused and forces you to feel pain because it thinks you're extremely injured.

Imagine burning your arm on something reeaaally hot, now imagine the burning sensation you feel is inside your muscles and joints and not on the surface on your skin, now imagine feeling that 24/7 and you can't get rid of it. That's what I'm dealing with man. Do you abled people get it now??

I feel like this a lot lately, especially bc uni started again and I'm using a wheelchair now. The other day in anatomy class I was constantly apologising and being just my general awkward self. A friend of mine and fellow med student messaged me later to ask if I felt like I was in the way with my wheelchair and to remind me that I belong there just as much as anyone else🥺 so thankful for the few friends I have found in medschool who are genuinely kind and accepting when it comes to my disabilities.

I'm in medschool and I'm the only visibly disabled student in my semester. I'm not very social outside of classes so I can't be certain, but I'm fairly sure I'm the only visibly physically disabled med student in multiple years. I've heard about one other who is atleast 4 years ahead of me. So, in doing the math I can conclude that I'm 1 out of 2 visibly physically disabled med students out of roughly 3500 med students at my university.....

if you feel like you’re ‘getting in the way’ as a mobility aid user, particularly with larger aids like wheelchairs, rollators/walkers, gait trainers and service dogs, That Is A Fault Of The Space (and potentially the people), not of you. You deserve all the space you take up and more.

I recently started using a cane everyday and so my previously invisible disability is suddenly visible. I also started medschool. It's been a while since I was properly social so I have questions...

People don't walk next to me. And if they accidentally do, they leave to walk next to someone else even if that means squeezing in three people on the sidewalk. No one talks to me if it's not to ask me "what's wrong". I have really tried to make an effort and talk to people but I don't know what to do.

Can it have something to do with my disability and my cane? Like they're scared to say the wrong thing? Or maybe it's because they've sensed the autism?;)

I know this is for artists and writers, but it's also just really helpful if you're considering beginning to use a cane or researching which one to buy. It gives a really nice overview of the most common types of canes. I have used a cane for a little over 6 months now and I would have loved to see something like this, when I was trying to figure out which cane to buy and how to walk with it. I usually use the cane with my dominant hand and didn't even realise that I can obviously just switch hands so I have my dominant hand free for stuff😂 I ALSO HAD NO IDEA THAT YOU CAN BUY A TIP FOR ICE!?!?!! I'VE BEEN SLIPPING AND FALLING AROUND FOR MONTHS AND DIDN'T EVEN QUESTION IT😭😭

A general cane guide for writers and artists (from a cane user, writer, and artist!)

Disclaimer: Though I have been using a cane for 6 years, I am not a doctor, nor am I by any means an expert. This guide is true to my experience, but there are as many ways to use a cane as there are cane users!

This guide will not include: White canes for blindness, crutches, walkers, or wheelchairs as I have no personal experience with these.

This is meant to be a general guide to get you started and avoid some common mishaps/misconceptions in your writing, but you absolutely should continue to do your own research outside of this guide!

This is NOT a medical resource!!! And never tell a real person you think they're using a cane wrong!

The biggest recurring problem I've seen is using the cane on the wrong side. The cane goes on the opposite side of the pain! If your character has even-sided pain or needs it for balance/weakness, then use the cane in the non-dominant hand to keep the dominant hand free. Some cane users also switch sides to give their arm a rest!

A cane takes about 20% of your weight off the opposite leg. It should fit within your natural gait and become something of an extension of your body. If you need more weight off than 20%, then crutches, a walker, or a wheelchair is needed.

Putting more pressure on the cane, using it on the wrong side, or having it at the wrong height can make it less effective, and can cause long term damage to your body from improper pressure and posture. (Hugh Laurie genuinely hurt his body from years of using a cane wrong on House!)

(some people elect to use a cane wrong for their personal situation despite this, everyone is different!)

(an animated GIF of a cane matching the natural walking gait. It turns red when pressure is placed on it.)

When going up and down stairs, there is an ideal standard: You want to use the handrail and the cane at the same time, or prioritize the handrail if it's only on one side. When going up stairs you lead with your good leg and follow with the cane and hurt leg together. When going down stairs you lead with the cane and the bad leg and follow with the good leg!

Realistically though, many people don't move out of the way for cane users to access the railing, many stairs don't have railings, and many are wet, rusty, or generally not ideal to grip.

In these cases, if you have a friend nearby, holding on to them is a good idea. Or, take it one step at a time carefully if you're alone.

Now we come to a very common mistake I see... Using fashion canes for medical use!

(These are 4 broad shapes, but there is INCREDIBLE variation in cane handles. Research heavily what will be best for your character's specific needs!)

The handle is the contact point for all the weight you're putting on your cane, and that pressure is being put onto your hand, wrist, and shoulder. So the shape is very important for long term use!

Knob handles (and very decorative handles) are not used for medical use for this reason. It adds extra stress to the body and can damage your hand to put constant pressure onto these painful shapes.

The weight of a cane is also incredibly important, as a heavier cane will cause wear on your body much faster. When you're using it all day, it gets heavy fast! If your character struggles with weakness, then they won't want a heavy cane if they can help it!

This is also part of why sword canes aren't usually very viable for medical use (along with them usually being knob handles) is that swords are extra weight!

However, a small knife or perhaps a retractable blade hidden within the base might be viable even for weak characters.

Bases have a lot of variability as well, and the modern standard is generally adjustable bases. Adjustable canes are very handy if your character regularly changes shoe height, for instance (gotta keep the height at your hip!)

Canes help on most terrain with their standard base and structure. But for some terrain, you might want a different base, or to forego the cane entirely! This article covers it pretty well.

Many cane users decorate their canes! Stickers are incredibly common, and painting canes is relatively common as well! You'll also see people replacing the standard wrist strap with a personalized one, or even adding a small charm to the ring the strap connects to. (nothing too large, or it gets annoying as the cane is swinging around everywhere)

(my canes, for reference)

If your character uses a cane full time, then they might also have multiple canes that look different aesthetically to match their outfits!

When it comes to practical things outside of the cane, you reasonably only have one hand available while it's being used. Many people will hook their cane onto their arm or let it dangle on the strap (if they have one) while using their cane arm, but it's often significantly less convenient than 2 hands. But, if you need 2 hands, then it's either setting the cane down or letting it hang!

For this reason, optimizing one handed use is ideal! Keeping bags/items on the side of your free hand helps keep your items accessible.

When sitting, the cane either leans against a wall or table, goes under the chair, or hooks onto the back of the chair. (It often falls when hanging off of a chair, in my experience)

When getting up, the user will either use their cane to help them balance/support as they stand, or get up and then grab their cane. This depends on what it's being used for (balance vs pain when walking, for instance!)

That's everything I can think of for now. Thank you for reading my long-but-absolutely-not-comprehensive list of things to keep in mind when writing or drawing a cane user!

Happy disability pride month! Go forth and make more characters use canes!!!

Witch Of The Ocean Deep’s Teensy Giveaway!

Hello, everyone! In order to give back, I’m hosting a little sea-witch-y giveaway in time for Samhain! Everything in it is super small so I thought this would be really fun. 

This includes: 

Little Book of Crystals

Witchy Kidrobot Enamel Pin

Moon Phases Patch (also could be used as a bookmark)

Four White Scalloped Seashells

Three Pretty Pointy Seashells

One Tumbled Rose Quartz

One Tumbled Amethyst

One Raw Amethyst

One Broken-Off Piece of a Sand Dollar

Three Raw Black Tourmaline

Two Clear Quartz

Two Pieces of Sea Glass

Three Lovely Sea-Toned Rocks

One Blue Wire-Wrapped Pendulum

Four Tiny Jars

One Small Jar of 100% Pure Bee Pollen (If you have any allergies to bees, please research this product before use in spells and do not ingest. Using gloves would be a good idea.)

Here’s the rules!

You must be following me.

No giveaway blogs, please.

Only 16 years and up. Any minors need their parent’s permission first!

You must be comfortable with giving me your name and address. 

Only reblogs count.  Do not tag this as ‘giveaway’.

Type 110808 in the tags so I know you read the rules.

If you have a bee allergy, re-read the italics.

Have fun! 

I will contact the winner on Samhain or October 31st! Good luck, everyone!