Don’t Ever Let Anyone Tell You It’s Not Okay To Rest. Don’t Let Anyone Tell You To Just Push Through

disabled people should be allowed privacy. visible disability isn't an invitation to demand personal information from someone. and disclosing disability isn't an invitation to lay out each facet of that disability in excruciating detail. someone having a medical episode deserves privacy even if that episode happens in public. someone who is disabled and struggling or taking a break deserves to refuse people offering help without having to explain why. a disabled person who mentions some things about their disability but not every little thing is under no obligation to explain anything more than they already have. disabled people don't just deserve basic rights. they deserve dignity and grace and respect. and they deserve privacy

Reblogging so I can find it again!!

Dealing With Executive Dysfunction - A Masterpost

The “getting it done in an unconventional way” method.

The “it’s not cheating to do it the easy way” method.

The “fuck what you’re supposed to do” method.

The “get stuff done while you wait” method.

The “you don’t have to do everything at once” method.

The “it doesn’t have to be permanent to be helpful” method.

The “break the task into smaller steps” method.

The “treat yourself like a pet” method.

The “it doesn’t have to be all or nothing” method.

The “put on a persona” method.

The “act like you’re filming a tutorial” method.

The “you don’t have to do it perfectly” method.

The “wait for a trigger” method.

The “do it for your future self” method.

The “might as well” method.

The “when self discipline doesn’t cut it” method.

The “taking care of yourself to take care of your pet” method.

The “make it easy” method.

The “junebugging” method.

The “just show up” method.

The “accept when you need help” method.

The “make it into a game” method.

The “everything worth doing is worth doing poorly” method.

The “trick yourself” method.

The “break it into even smaller steps” method.

The “let go of should” method.

The “your body is an animal you have to take care of” method.

The “fork theory” method.

The “effectivity over aesthetics” method.

It's not "anti-recovery" to accept that you'll never be fully abled.

Just made an account on Medium so I could read this. Made it about 1/3 through and I'm absolutely hooked and excited to finish it!! But first, time for a nap.

For the longest time, I have had trouble understanding FND - specifically whether it's just a shitty diagnosis made up by the medical system to gaslight people or if it's a genuine medical condition. This essay is rly helpful and has already broadened my understanding. It's incredibly well written, particularly bc of the extremely thorough research it's a result of

Medium

Cadenza for Fractured Consciousness

A Personal History of the World’s Most Misunderstood Illness

I am one of the most medically examined people in North America. For over a decade, no one could explain why I lost my ability to walk, speak, and use my hands. Why the lightning-like headaches? Why the ringing in my ears? Test after test came back negative. Doctors thought I might have a genetic abnormality no one's ever seen before, or a condition so rare that it had previously escaped medical classification. Then I got accepted to the top undiagnosed disease research program in the world, and they told me the only diagnosis I was unprepared to hear: it was Functional Neurological Disorder (FND), a much-misunderstood condition which was once known as Conversion Disorder, and before that, as Hysteria. And that was only the beginning of things getting weird. The essay above is the product of three years of research into the history, neuroscience, and politics of FND. It touches on the many medical failures that define the history of the disorder, the pervasive sexism and lazy mind-body dualism that prevented scholars from seeing it clearly, and why - finally - a better understanding may be at hand, with revolutionary implications for how we understand human consciousness and the experience of having a body.

FND fucked my life up. This is my reply. Thanks for reading.

Elaborate fantasies of owning a wheelchair save me.

Elaborate fantasies of owning a wheelchair?

Save me elaborate fantasies of owning a wheelchair.

Do you think it's better to fail at something worthwhile, or to succeed at something meaningless?

“We all looked up” by Tommy Wallach

hey if you're trans in the us i love you. hey if you're queer in the us i love you. hey if you're a person of color in the us i love you. hey if you're a woman in the us i love you. hey if you're disabled in the us i love you. i love you i love you i love you

You get to choose what you want to do with your life, instead of life choosing for you. But having that power, the power to choose, can be a doubleedged sword. Because you can choose wrong.

“We all looked up” by Tommy Wallach