Hey If You're Not Physically Disabled And Just ND, Please Don't Say "cr*ppling," Or Any Variations Thereon,

CoVID-19 Trauma Resources

HEY GUYS

Know how I talk about trauma and how it works (and how to mediate it and avoid it) and so on a lot?

The Neurosequential Network is putting together webinars and talks and resources about that here.

Thus far there’s a recording of the live meeting they did yesterday, a link to an episode on The Trauma Therapist Podcast on the issue, and to Peace of Mind Foundation’s facebook discussion, but much more is planned.

That said even these are amazing resources as they are. This can be particularly useful if there are children in your life, but it’s honestly useful period.

(This is the network behind the symposium I was stupidly excited about going to; sadly it’s been postponed until next year, but the network started putting this stuff together immediately.)

being a self-taught artist with no formal training is having done art seriously since you were a young teenager and only finding out that you’re supposed to do warm up sketches every time you’re about to work on serious art when you’re fuckin twenty-five

Friends, I think we need to talk about Covid.

I want to get a few caveats out there before I start:

I am aware that there are people who need to exercise extreme caution about Covid; I live with someone who has two solid organ transplants and who is at the most immune compromised level of immune compromised. *I* have to be extremely cautious about covid.

Masking does prevent a certain level of transmission, and people who think they may have covid should mask and people who are concerned that they may be at high risk for covid should mask.

You should be vaccinated and boosted with the most recent vaccines that are available to you; covid is highly transmissible and very serious, you do not want to get covid and if you do get covid you don't want it to be severe and if you do get covid you don't want to give someone else covid and up-to-date vaccinations are the best way to reduce transmission and help to prevent severe cases of Covid.

We should be testing before going to any gatherings, and informing people if we test positive after gatherings, and testing if we suspect we have been exposed.

It is bullshit that there aren't good protections for workers who have covid; you should not be expected to go to work when you are testing positive

It is bullshit that people who are testing positive are not isolating for other reasons; if you have Covid you should not be going out and exposing other people to it even if you are experiencing mild symptoms or no symptoms.

We do need better ventilation systems for many kinds of spaces. Schools need better ventilation, restaurants need better ventilation, doctor's offices and hospitals and office buildings need better ventilation and better ventilation can reduce covid transmission.

I want to make it clear that Covid is real and there are real steps that individuals and systems can take to prevent transmission, and that there are systems that are exerting pressures that needlessly expose people to covid (the fact that you can lose your job if you don't come in when you're testing positive, mainly; also the fact that covid rapid tests should be ubiquitous and cheap/free and are not).

All of that being said: I'm seeing some posts circulating about how we're at an extremely high level of transmission and the REAL pandemic is being hidden from us and, friends, I'm pretty sure that is just incorrect and we're spreading misinformation.

I'm thinking of this video in particular, in which the claim is made that "your mystery illness is covid" in spite of negative tests. The guy in the video says that there's nothing else that millions of people could be getting a day, and that he predicted this because a wastewater spike in December meant that there was a huge spike in cases.

I've also seen people saying that deaths are where they were in 2021-2022, and that we're still at "a 9/11 a week" of excess deaths and friends, I'm not seeing great evidence for any of these claims.

I know that we (in the US, which is where the numbers I'm going to be citing are from) feel abandoned by the CDC and the fact that tracking cut off in May of 2023. But that only cut off for the federal tracking.

I live in LA county and LA county sure as shit is still tracking Covid.

If you want a clearer picture, you can see the daily case count over time compared to the daily death count:

Okay, you might say, but that's just LA.

Alright, so here's Detroit:

Right, but maybe that's CDC data and you don't trust the CDC at this point.

Okay, here's fatalities in New York tracked through New York's state data collection:

It's harder to toggle around the site for South Dakota, but you can compare their cases and hospitalizations and deaths for early 2022

To cases and hospitalizations and deaths from early 2024

And see that there's really no comparison.

Okay, you might say, but people are testing less. If they're testing less of course we're not seeing spikes, and they're testing less because fewer tests are available.

Alright, people are definitely testing less than they were in 2021 and 2022. Hospitalization for Covid is probably the most clear metric because you know those people have covid for sure, the couldn't not test for it.

Here are hospitalizations over time for LA:

Here are hospitalizations over time for New York:

As vaccination rates have gone up, cases, deaths, and hospitalizations have gone down. It IS clear that there are case spikes in the winter, when it is cold and people are indoors in poorly ventilated spaces and people are more susceptible to respiratory infections as a result of cold air weakening the protection offered by our mucous membranes, and that is something that we will have to take precautions about for the forseeable future, just as we should have always been taking similar precautions during flu season.

So I want to go point-by-point through some of the arguments made in that video because I'm seeing a bunch of people talking about how "THEY" don't want you to know about the virus surge and buds that is just straight up conspiracism.

So okay, first off, most of what that video is based on is spikes in wastewater data, not spikes in cases. This is because people don't trust CDC data on cases, but I'd say to maybe check out your regional data on cases. I don't actually trust the CDC that much, but I know people who do tracking of hospitalizations in LA county, I trust them a lot more. Wastewater data does correlate with increases in cases, but this "second largest spike of the entire pandemic" thing is misleading; wastewater reporting is pretty highly variable and you can't just accept that a large spike in covid in wastewater means that we're in just as bad a place in the pandemic as we were in 2022. We simply have not seen the surge of hospitalizations and deaths that we would expect to see in the weeks following that spike in wastewater data if wastewater data was reflective of community transmission.

The next claim is that "there is nothing else that is infecting millions of people a day" and covid isn't doing that either. The highest daily case rates were in January of 2021 and they were in the 865k a day range, which is ridiculously high but isn't millions of cases a day.

But what we can see is that when people are tested by their doctors for Covid, RSV, and the Flu, more tests are coming back positive for the Flu. Covid causes more hospitalizations than the other two illnesses, but to be honest what the people in the video are describing - lightheadedness, dizziness, exhaustion - just sound like pretty standard symptoms of everything from covid to the cold to allergies. There are lots of things your mystery illness could be.

The video goes on to talk about the fact that people aren't testing, and why their tests may be coming back negative and I'd like to point out that the same things are all true of Flu or RSV tests. People might be getting tested too early or too late; getting a negative test for the flu isn't a good reason to assume you've got covid, getting a negative test for covid isn't a good reason to assume you've got the flu, and testing for viruses as a whole is imperfect. There are hundreds of viruses that could be the common cold; there are multiple viruses that can cause bronchitis; there are multiple viruses that can cause pneumonia, and you're not going to test for all of these things the moment you start feeling sick.

He then recommends testing for multiple days if you have symptoms and haven't had a positive test (fine) and talks about the location of the tests (less fine). Don't use your rapid tests to swab your throat or cheek unless it specifically says that they are designed to do so. Test based on the instructions in the packet.

He points out that the tests probably still pick up on the virus because they're not testing for the spike protein, they're testing for the RNA (good info!)

The video then discusses something that I think is really key to this paranoia about the "mystery illnesses" - he talks about how covid changes and weakens your immune system (a statement that should come with many caveats about severity and vulnerability and that we are still researching that) and then says that it makes you more susceptible to strep or mono and that "things that used to clear in a day or two now hit you really hard."

And that's where I think this anxiety is coming from.

Strep throat lasts anywhere from three days to a week. A cold takes about a week to clear. The flu lasts about a week and can knock you on your ass with exhaustion for weeks depending on how bad you get it. Did you get a cough with your cold? Expect that to take anywhere from three to eight weeks to clear up.

I think that people are thinking "i got a bad virus and felt really sick for a week and haven't gotten my energy back" but that just sounds like a bad cold. That sounds like a potent allergy attack. That doesn't even sound like a bad flu (I got a bad flu in 2009 and thought i was going to straight-up die I had a fever of 103+ for three days and felt like shit for three days on either side of that and took six weeks to feel more like myself again).

Getting sick sucks. It really, really sucks. But if you're getting sick and you're testing for covid and it's coming back negative after you tested a few times, it's almost certainly not covid.

The video then says "until someone provides evidence that it's not covid, it should be assumed to be covid because we have record levels of covid it's that simple" but that's not simple. We don't have record levels of covid and he hasn't proved it. We have record high levels of wastewater reports of covid, which correlates with covid cases but the spike in wastewater noted in december didn't see a spike with a corresponding magnitude of cases in terms of either hospitalizations or deaths, which is what we'd have seen if we had actual record numbers of covid.

He says that if you want to ignore this, you'll get sick with covid, and that about 30-40% of the US just got sick with covid in the last four months (which is a RIDICULOUSLY unevidenced claim).

He says that we need to create a new normal that takes covid into account, which means masking more often and testing more often and making choices about risk-avoidant behaviors.

Now, I don't disagree with that last statement, but he prefaces the statement with "it doesn't necessarily mean lockdown" and that's where I think the alarmism and paranoia is really visible here. We are so, so far away from "lockdown" type levels that it's absurd to discuss lockdown here.

What I'm seeing right now is people who are chronically ill, people who are immune compromised, and people who are experiencing long covid (which may not be distinct from other post-viral syndromes from severe cases of flu, etc, but which may be more severe or more notable because of the prevalence of covid) are talking about feeling abandoned and attacked and left behind by society because covid is still out there, and still at extremely high levels.

I am seeing people who feel abandoned and attacked because the lgbtq+ events they are attending don't require masking. I am seeing people who are claiming that it is eugenicist that their schools don't have a negative test policy anymore.

And this comes together into two really disconcerting trends that I've been observing online for a while.

The claim that the pandemic is still as bad as it's ever been and in fact may be worse but we can't know that because "they" (the CDC, the government, capitalist institutions that want you back in the office, the university industrial complex that wants your dorm room dollars) are covering up the numbers and

Significant grievance at the fact that people are acting like number one is not true and are putting you at risk either out of thoughtlessness (because they don't realize they're putting you at risk) or malice (because they don't care if the sick die).

And those things are a recipe for disaster.

I think I've pretty robustly addressed point one; I don't think that there's good evidence that there's a secretly awful surge of covid that nobody is talking about. I think that there are some people who are being alarmist about covid who are basing all of their concern on wastewater numbers that have not held up as the harbinger of a massive wave of infections.

So let's talk about point number two and JK Rowling.

Barnes and Noble is not attacking you when it puts up a Hogwarts Castle display in the lobby. Your favorite youtuber isn't trying to hurt you when they offhandedly mention Harry Potter.

If you let every mention of Harry Potter or every person who enjoys that media franchise wound you, you are going to spend a lot of your time wounded.

People are not liking Harry Potter at you.

Okay.

People are also not not wearing masks at you.

You may be part of a minority group that experiences the potential for outsized harm as a result of majority groups engaging in perfectly reasonable behaviors.

There are kind, well-meaning, sensible people who go out every day and do something that may cause you harm and it's not because they want to hurt you or they don't care about whether you live or die, it is because they are making their own risk assessments based on their own lives and making the very reasonable assumption that people who are more concerned about covid than they are will take precautions to keep themselves safe.

We are not at a place in the pandemic where it is sensible to expect people with no symptoms of illness to mask in public as a matter of course or to present evidence of a recent negative test when entering a public building in their day-to-day life.

I think now is a really good time to sit down and ask yourself how you expect things to be with covid as an endemic part of our viral ecosystem. I think now is a good time to ask yourself what risk realistically looks like for you and for people who are unlike you. I think now is a good time to consider what would feel "safe" for you and how you could accomplish feeling safe as you navigate the world.

I'm probably going to continue masking in most indoor spaces for years. Maybe forever. There are accommodations that SHOULD be afforded to people who have to take more precautions than others (remote learning, remote visits, remote work, etc.), and we should demand those kinds of accommodations.

But it is going to poison you from the inside out if you are perpetually angry that people who don't have the same medical limitations as you are happy that they get to go shopping with their faces uncovered.

So now I want to talk to you about my father in law.

My father in law had a bone marrow transplant in 2015. That's the most immune compromised you can get without having your organs swapped out.

The care sheet for him after the transplant was a little overwhelming. The list of foods he couldn't eat was intimidating and the limitations on where he could go was depressing. It cautioned against going to large events, it recommended outdoor gatherings where possible but only if he could avoid sunlight and was somewhere with no history of valley fever. It said that he should wear masks indoors any time he was someplace with poor ventilation and that he should avoid contact with anyone who had an illness of any kind, taking special note to avoid children and anyone recently vaccinated for measles.

It was, in short, pretty much what someone immune compromised would need to do to try to avoid a viral infection. Sensible. Reasonable. Wash your hands and social distance; wear masks in sensitive contexts and don't spend time in enclosed places with people who have a communicable illness.

This is what life was always going to be like for people who are severely immune compromised, and it was always going to be incumbent upon the person with the illness to figure out how to operate in a society that is not built with them in mind.

It is not the job of every parent I encounter to tell me whether their child has been vaccinated against measles or chicken pox in the last three months. That isn't something that people need to do as part of their everyday life. However it IS my responsibility to check with the parents I'm hanging out with whether their children have been vaccinated against measles or chicken pox in the last three months so I know if it's safe for my immune compromised spouse to be around them.

If you want an environment in which you feel safe from covid, at this point in the pandemic (when the virus is endemic and not spreading rapidly as far as we can see from case counts) it is your responsibility to take the steps necessary to make you feel safe. Some of those steps will involve advocating for safety improvements in public spaces (again, indoor ventilation needs to be better and I'm personally pretty extreme about vaccination requirements; these are things we should be discussing in our school board meetings and at our workplaces), some of those steps will involve advocating for worker protections, guaranteed sick time, and the right to healthcare. But some of the things you're going to need to do to feel safe are going to come down to you.

If you are concerned about communicable diseases you have to be realistic about the fact that our society doesn't go out of its way to prevent communicable diseases - norovirus among food service workers pre-pandemic is pretty clear evidence of that. You are going to have to be proactive about your safety rather than expecting the world to act like Covid is at 2021-2022 levels when it is measurably not.

Rings my fucking bell, like a perennial fucking plague maiden:

Center harm, not disgust!

When in doubt (and when not in doubt, just swept by problems bigger than you and assured by someone that they know the answer, so don't think right now, just Do!), center harm.

Focus on what specific harm you're reducing with your actions. Make sure it's tangible and concrete. If your actions are minimizing hypothetical harm at the cost of real, tangible harm on others, 9 out 10 times you're on the wrong fucking side, being weaponized by propaganda.

If a conversation revolves around disgust as a driver for action, you're being radicalized. If a call to action depends on your emotional response, you're being manipulated. I'm sorry, this isn't the 90s anymore, social media has eroded the web of respectability of the pre internet society. The primary axis for misinformation to spread in this day and age is emotional response: half the things you believe are true and share as such are not based on fact, expert opinion or personal research. Social media has conditioned us (all of us! You and me and most dangerously of all, the idiots we put in power) that if something feels true, it probably is.

But do you know for sure it is? Do you think it's true because you have first hand experience or actual time spent on reputable sources learning it to be fact? Or just because it aligns with your worldview and it would be nice for you if it were true?

Are you taking action because you're angry and a group of fellow angry folk invited you to join them? Do you have a plan or is this just catharsis? Are you aware of the consequences of your actions or are you drunk on rage and focused only on the immediate future?

Center harm. Center specific actions and their consequences.

Discomfort is not harm. Disgust is not harm. Hypothetical paranoia is not harm.

The reactionary pipeline is real and your self-image as a progressive is not actually enough to save you from falling down the hole. Radicalization is not hinged on politics alone. Saying you're a leftist is worthless if your thought process and actions themselves are indistinguishable from qanon losers. Conspiratorial thought has literally no politics inherently, and your insistence it does is pure lack of critical thought on display.

Center harm, not feelings, not politics, not group think.

Center harm, and remember that individual actions cannot dismantle systemic structures on their own, so anyone who calls for individual action at the cost of community structures is not actually trying to change anything, and instead actively suppressing efforts to make anything better in any way.

what the fuck was wrong with people that Labyrinth was originally a flop. How could they take any aspect of it so for granted. How could they fucking do that to Jim Henson. Newspapers were calling it boring and even ugly. I want to go back in time and beat their asses.

every time i see trad gender roles people being weird about fibercraft i wanna tell them

-medieval and early modern knitting guilds were full of men learning and perfecting fancy knitting techniques to impress rich clients

-in cold, wet climates like the scottish highlands knitting was done by the whole family, in fact it was the perfect activity to do while a man was out on a fishing boat or in the pasture with his sheep and cattle

-men who were away from women for a long time had to know how to knit and sew at least well enough to mend their own clothes. soldiers knitted. sailors knitted. cowboys and frontiersmen knitted. vikings probably knitted (actually they would have been doing a kind of proto knitting called nalbinding, but that's beside the point). all those guys the far right love to treat as ultra masculine heroes were sitting around their barracks and campfires at night darning their socks and knitting themselves little hats

The Other Half of the Social Model of Disability

Lots of people in fandom are aware of the Social Model of Disability, which is a direct contrast to the Medical Model of Disability. Problem is, most of those people only understand half of the Social Model.

If you don't know what I'm talking about, the "in a nutshell" version is that the medical model views disability as something that is broken and which needs to be fixed, and little or no consideration is given beyond trying to cure it (and little or no consideration is given to the needs and wishes of the person who has it). The social model of disability, on the other hand, says that the thing that disables a person is the way society treats them. So, for example, if someone is paralyzed and can't walk, what disables them from going places is buildings that are not wheelchair accessible. (Or possibly not being able to afford the right type of wheelchair.) Inaccessible spaces and support equipment you can't afford are choices society makes, not a problem with the disabled person.

People then take this to mean that the only problem with disability is the society that surrounds it, and therefore in some utopian future where capitalism is no more and neither is ableism or any other form of bigotry, all problems disabled people have will be solved.

Except that what I've just described is not actually what the social model of disability says. Or, rather, it's only half of what the social model of disability says.

The actual social model of disability begins with a distinction between impairments and disabilities. Impairments are parts of the body/brain that are nonstandard: for example, ears that do not hear (deafness), organs that don't work right (e.g. diabetes), limbs that don't work (paralysis), brain chemistry that causes distress (e.g. anxiety, depression), the list goes on. The impairment may or may not cause distress to the person who has it, depending on the type of impairment (how much pain it causes, etc.) and whether it's a lifelong thing they accept as part of themselves or something newly acquired that radically changes their life and prevents them from doing things they want to do.

And then you have the things that disable us, which are the social factors like "is there an accessible entrance," as described above.

If we ever do get a utopian world where everyone with a disability gets the support they need and all of society is designed to include people with disabilities, that doesn't mean the impairments go away. Life would be so much better for people with impairments, and it's worth working towards, but some impairments simply suck and would continue to suck no matter what.

Take my autism. A world where autism was accepted and supported would make my life so much easier ... and yet even then, my trouble sleeping and my tendency to hyperfixate on things that trigger my anxiety would still make my life worse. I don't want to be cured of my autism! That would change who I am on a fundamental level, and I like myself. My dream is not of a world where I am not autistic, but a world in which I am not penalized for being autistic and have the help I need. And even in that world, my autism will still sometimes cause me distress.

There are some impairments--conditions that come with chronic pain, chronic fatigue, etc.--where pretty much everyone with that impairment agrees that the ultimate goal is a cure. But nobody knows how long a cure will take to find (years? decades? centuries?), whereas focusing on the social things disabling you can lead to improvement in your daily life right now.

In conclusion: the social model of disability is very valuable, and much superior to the medical model on a number of levels. But: please don't forget that the social model makes a distinction between disability and impairments, and even if we reach every goal and get rid of all the social factors that disable people, some impairments will be fine and cause no distress to the people who have them, some will be a mixed bag, and some will still be major problems for the people who have them.

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